Living with a rare illness

Living with Wegener's.

2 years ago I was diagnosed with a rare and incurable illness.This is my story, my journey and my humorous coping mechanism.


I had no idea that I would lose control of my life before turning 30, so certainly didn’t make any plans, mentally or otherwise. Now a regular at the hospital rather than the pub, my life has turned upside down.

Those who are closest to me, with the best will in the world, sometimes don’t understand what I am facing or how I am feeling; so how can I expect the rest of the world to? If I can raise awareness/understanding, or if I make you laugh then my job is done.


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