At aged 28 I was diagnosed with something called Vasculitis, which was then further clarified as Wegener’s Granulomatosis or GPA. What I didn’t know at the time was that this disease is incredibly rare and currently incurable. I wasn’t aware of the affects that living with the illness would have on my life and the battles I would face, the changes I would have to make and the people that would come and go.

This blog is about my journey so far, the highs and the drastically lows, the things that are yet to come and also about raising awareness for the condition. Even those closest to me struggle to understand, so how can I expect strangers to?